Jaden & Jaxson... TTTS survivors: Great Progress

The last couple days have been great!! Jaxson had an appointment with his pediatrician yesterday and she thought he was doing so well. Last week we turned him down to 1/16 liter and he tolerated it good and stated 100 all week. She was so pleased she said we can try him off his oxygen!! We were not expecting this to happen so soon. We turned him down to 1/32 yesterday evening and did fine throughout the night! This morning we took his oxygen off and he got the cutest face!! He was wide eyed and and wasn't sure what was going on. He did great all did without it, he will ding every once in awhile but it is just short and he comes right back up. I do however put his oxygen on during his feeds otherwise he dings quit a bit. It is only at 1/32 flow when he eats but it makes a huge difference. We want him to be focused on his eating and not his breathing. He only gained 5oz in a week which is okay but we would like to see him gaining a lot more!! He was struggling with his thickened feeds because it would get so thick he couldn't get any out so I tried not thickening them and took it great. His reflex hasn't been any worse with him not getting his thickened feeds so the doctor said as long as he is tolerating it then that's fine.

Both the boys failed their hearing screens in the NICU and got refereed to Elks Hearing and Balance Center. Jaden has his appointment Monday and he can hear!! He did great during all the long tests and he passed with no concerns at all. I knew he would do just fine because he will follow our voice now and get very alert when we read to him or talk. He also can hear music from his toys and gets very interested in it. Jaxson has his appointment in two weeks and I think he will do just fine as well.

I have started taking the boys on walks at night and they love it! I thought that they would fall asleep once we started going but they both stay awake the whole time and get little smiles. It doesn't matter how fussy they are before the walk they calm right down once we start going. They are both also getting into tummy time a lot more. Jaden gets his legs and arms moving pretty good and almost looks like he's going to roll over. Jaxson is more into just picking his head up than trying to move his whole body. If he stays there for awhile he will sometimes scoot around in circle.

They both are continuing to do great at home and we love them being here with us all the time!!